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Devon's Forgotten People
M.E. is a chronic, fluctuating illness affecting 250,000 people in the UK. It may be diagnosed as Chronic Fatigue Syndrome (CFS) or Post Viral Fatigue Syndrome (PVFS). M.E. symptoms may include persistent exhaustion, muscle and/or joint pain, sleep disturbance, feeling ’flu-like and having problems with memory and concentration.
Action for M.E. will provide information and support, while campaigning for better services, more effective and greater investment in research – until our vision is achieved and M.E. is overcome.
But here in Devon they are forgotten with hundreds of sufferers claiming they have been left undiagnosed or left to fend for themselves.
They have set-up their own group so they can have a stronger voice when lobbying for change and getting the medical profession to take them seriously.
The S.A.M.E Committee, was formed in September 2010, the members are made up of those affected by CFS/M.E. and carers' who together have a wide range of experience of ongoing problems, that are caused by the illness.
Getting better is like solving a jigsaw puzzle. You have to put the right pieces in the right places, at the right time to see an improvement.
The word S.A.M.E is also a symbol to show with this life altering illness, that on the outside we can look the same, but on the inside it can be a mine field.
To join a forum or speak to other sufferers on facebook at www.facebook.com/actionforme
If you have or think you have the illness, or know someone with it, we would like to welcome you to come and join us at one of our group meetings.
SAME (Support and Awareness of M.E. Exeter) now have a new meeting venue. Starting from March, meetings will be held at Holiday Inn, Guardian Way, M5 Junction 29, Exeter Business Park, EX1 3PE.
Doors will open at 6.30pm ready for a 7.00pm start. There will now be a door donation of £3 which will cover tea or coffee.
The topic for the next meeting will be strategy to rest body and mind and will be led by Mary Davey and will include theory mindfulness practice including breathing techniques.
Celebration of the one year anniversary since the group was set up.
If you are a member of this group but cannot attend the next meeting, or for more information, please GO HERE
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