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A Milton Keynes mum is trying to raise £1500 to pay for her son to go to America for medical research.
3 year old Joshua Cullip suffers from a rare terminal disease called Niemann Picks.
It’s a degenerative disease, which is sometimes also known as childhood Alzheimer’s.
Although the condition is incredibly rare there is also another child in Milton Keynes who suffers from it, 4 year old Hollie Carter.
On the 1st April both families will travel to America for 10 days to allow doctors to carry out various tests on the children to try and find out more about the disease.
Tonight (Saturday 27th February) Joshua’s mum, Jodie O’Grady, is hosting a charity “waxing night” at The Grebe pub at Great Holm from 8pm.