Following the death of a 10 year old boy after he was misdiagnosed by paramedics, South Western Ambulance Service have made training videos with his parents to stop it happening again.
Ray Of Hope For Torette's Sufferers
A 14-year old from Plymouth is setting up his own charity to help the 10 thousand sufferers of Torette's syndrome who live in the South West.
Jack Davis, from Devonport, was bullied from an early age and he's revealed the bullies used to call him names like 'twitch boy, 'the twitcher' and 'the twitchinator'.
It destroyed his self-esteem made him feel isolated and like an outcast. One in every 100 children has TS.
Jack is in Year 9 at Plymstock school and suffers with head movements and a facial tic both of which are controlled with medication he takes 3 times a day.
He's created the Tourette's Awareness South West support charity for both adult and children Tourette's Syndrome sufferers.
They offer information and advice to sufferers and their families who have little or no understanding of Tourette's Syndrome.
It is also to hold support sessions for groups of parents/carers and sufferers, both adults and children.
And Jack hopes to hold fundraising events like family days out, sponsored fun runs, walks and abseils for the charity.
He wants to improve the lives of Torette's sufferers.
CLICK HERE to link to Jack's website: http://tourettesawareness.weebly.com/
- Tourette syndrome is an inherited neuropsychiatric disorder with onset in childhood, characterized by multiple physical (motor) tics and at least one vocal (phonic) tic.
- These tics characteristically wax and wane, can be suppressed temporarily, and are preceded by a warning of an urge.
- Tourette's is defined as part of a spectrum of tic disorders, which includes transient and chronic tics.
For other information CLICK HERE: http://www.tourettes-action.org.uk/
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