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The James Hopkins Trust provides nursing respite care for severely disabled, life threatened and life limited children under the age of 6 years living in Gloucestershire.
This care is delivered either in the family home, or at Kites Corner, their purpose built multi-sensory respite centre and gardens. They provide a crèche, drop in sessions and school holiday respite for children up to 11 years old.
The charity was inspired by Vance and Heather Hopkins’ severely disabled son James, whose care requirements were such that, in the absence of any other available support mechanisms, needed to be admitted to hospital to give his parents some much needed respite from the stress and pressure of caring for him on a day to day basis. During one such hospital stay James caught a serious infection, from which he died aged 20 months. The gap in the health care service to provide them with support in caring for James in the family home, inspired them to help other families needing respite care and resulted in the creation of the James Hopkins Trust.
Connor suffered a significant bleed in his brain at birth resulting in Cerebral Palsy, epilepsy & developmental delay, which leaves him wheelchair dependent with communication difficulties & feeding problems. Despite his difficult start to life Connor is making excellent progress.
The extensive multi-sensory facilities at Kites Corner have made an incredible difference to Connor's development. Connor spoke his first words at the James Hopkins Trust Christmas party, which was a milestone his parents never believed they would see.
His Mum said "The support the Trust has given to Connor and I over the last couple of years has been utterly priceless. I know that Connor's development, especially his communication and people skills, have been brought along all the more due to the time he has spent with the amazing team at the Trust"
Funding from Global's Make Some Noise will pay for a respite nurse to support the children at Kites Corner or in the family.
Find out more about James Hopkins Trust here.