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Keanon has Ohtahara Syndrome which means he has to be monitored constantly, day and night.
Thanks to the help and support provided by the Pepper Nurses from Iain Rennie Hospice in Tring, he can live at home with his mum and dad.
The nurses are on hand to help at any time of the day and night and thanks to the Pepper Foundation, Keanon now has a special baby monitor, meaning he can sleep in his own room for the first time since his birth.
Daniel Fox from Heart Breakfast met Keanon and his parents at their home in Chesham to find out how they benefit from the care provided by Iain Rennie Hospice at Home.