Celine Dion health latest: What's wrong and how is she doing now?

18 June 2024, 10:45 | Updated: 25 June 2024, 10:48

Celine Dion was diagnosed with Stiff Person Syndrome in December 2022 but how is she now? Here's everything you need to about her health and illness as she opens up.

Celine Dion, aged 56, was diagnosed with Stiff Person Syndrome (SPS) in December 2022, causing her to cancel her upcoming Courage World Tour as she took time to focus on her health and on-going illness.

Now, officially ready to open up on how she's been doing since the rare diagnosis, the My Heart Will Go On singer has released her tell-all documentary, I Am: Celine Dion.

Getting open and honest with her fans about the neurological condition for the very first time, the Amazon Prime Video show reveals all about her day-to-day life battling Stiff Person Syndrome and how it's impacted her life personally and professionally with her music and songs.

• Listen now on Global Player, the official Heart app: Spencer & Vogue

An on-going battle with the illness, here is how Celine Dion is doing now and the latest on her Stiff Person Syndrome? Here's the latest.

Celine Dion health latest

June 2024

Celine Dion stepped out looking fresh and glamorous in New York City for the premiere of her new documentary, I Am: Celine Dion. The mum-of-three got a standing ovation for her bravery, bringing her to tears.

She said: "I cannot believe how fortunate I am to have my fans in my life," the star said on stage. "Thank you to all of you for being part of my journey.

• READ MORE: Is Celine Dion going on tour? Everything we know about future concerts
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"This movie is my love letter to each of you. I hope to see you all again very, very soon."

While in person, Celine looks great, she admitted earlier this month that she had consumed a life-threatening amount of diazepam to help ease her muscle spasms so she could perform on stage.

February 2024

After years out of the spotlight due to her illness, Celine surprised fans when she appeared at the 2024 Grammys, with viewers delighted to see her looking well and in high-spirits.

She took to the stage where she received a standing ovation from the celebrity-filled crowd. She then presented an award to Taylor Swift, a moment which then went viral as rumours of a feud swirled. Fans were left disgruntled with how Taylor greeted Celine but many argued it was due to the excitement of the moment. They quickly shared a snap embracing on Instagram to end all feud questions.

January 2024

Celine confirmed she was ready to finally open up to her fans about her Stiff Person Syndrome condition and would be releasing a documentary later this year.

In the trailer, the superstar states: "I've been diagnosed with a very rare neurological disorder and I wasn't ready to say anything before, but I'm ready now."The emotional clip ends with Celine stating: "'If I can't run, I'll walk. If I can't walk, I'll crawl. But I won't stop, she won't stop."

In early 2024, sources told Life & Style magazine that the Eurovision winner had a 'glass half-full attitude' and has managed to remain 'optimistic during the toughest of times.'

Watch the I Am: Celine Dion trailer here

Watch the trailer for I Am: Celine Dion

September 2023

Celine Dion's sister Claudette, 74, gave fans an update on the singer's health. In an interview she confessed that Celine was 'doing everything to recover' amidst her battle with Stiff Person Syndrome.

Claudette opened up about her sister's symptoms, telling HELLO! Canada: "It's an illness we know so little about. There are spasms – they're impossible to control.

"There's little we can do to support her, to alleviate her pain. We're crossing our fingers that researchers will find a remedy for this awful illness."

What is Stiff Person Syndrome?

According to Johns Hopkins Medicine Stiff Person Syndrome (SPS) is a rare autoimmune neurological disorder that most commonly causes muscle stiffness and painful spasms that come and go and can worsen over time.

SPS can cause the person to have difficulty walking and affects more women than men.

Is there a cure for Stiff Person Syndrome?

Currently there is no cure for Stiff Person Syndrome, however, people with the disorder can take medication or have therapy to lessen their symptoms.

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